Click here to download our August 2018 newsletter.
Legal Resources and Cancer “Legal” is not usually the first word that comes time mind when you have a cancer diagnosis. The focus when initially diagnosed tends to be on treatment and the next steps. There are several paths in which you may have to access legal resources: * Disability * Employment Concerns * Health Insurance * Estate Planning Depending on what state you reside in the laws and resources available will vary. Understanding your rights in these areas will make you a better advocate for yourself. Below are some local and national resources that may be beneficial when educating yourself on these topics. Cancer Legal Resources National Cancer and Legal Services Network Dallas Bar Association Tarrant Bar Association Legal Aid of NorthWest Texas Legal Hospice of Texas
Recursos legal y cáncerLegal, por lo general, no es la primera palabra que le viene a la mente cuando tienes un diagnóstico de cáncer. El enfoque cuando inicialmente se diagnostica tiende a ser el tratamiento y los próximos pasos. Hay varios caminos en los que puede tener que acceder a los recursos legales: • Discapacidad • Preocupaciones de empleo • Seguro de salud • Planificación patrimonial Según el estado en que resida, las leyes y los recursos disponibles variarán. El entendimiento de sus derechos en estas áreas le hará un mejor defensor de sí mismo. A continuación se encuentran algunos recursos locales y nacionales que pueden ser beneficiosos al educarse sobre estos temas. Cancer Legal Resources National Cancer and Legal Services Network Dallas Bar Association Tarrant Bar Association Legal Aid of NorthWest Texas Legal Hospice of Texas
Want to connect with our Cancer Resource Specialist Jackie Castillo? Email JCastillo@CancerSupportTexas.org or call (214) 345-8428!
Jackie is here to help you with anything you may need.]]>
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I started volunteering at CSC through their relationship with the Junior League of Dallas in 2014 and have selected CSC as my placement every year since. When I was searching for a placement my first year with Junior League I knew I wanted to go somewhere that was making a difference in a community I held dear to my heart, those impacted by cancer. I lost my grandpa when I was in college after a 12 year battle with Leukemia and in the past 12 months have lost both my grandma and aunt to cancer. Being in the clubhouse at CSC and seeing the impact they have on the lives of all those affected by this terrible disease has helped me through my own struggles. I was actually volunteering at the Dallas clubhouse when I received the call that my grandma had passed and will forever be grateful that I was in a place where I truly felt supported and understood when I needed it the most. Today, in addition to volunteering through Junior League at CSC, I am also in my second year on the Young Leadership Board and first year on the Finance Committee of the Board of Directors. When I’m not at the Dallas clubhouse, I enjoy watching crime shows, reading, golf, and being outside with my dogs.
To learn how you can give back to your North Texas neighbors with a cancer diagnosis, please click here.]]>
Advocacy and Cancer There are moments in time when a major life event can spark the motivation to make change. The need for change often arises when people experience roadblocks and frustrations while dealing with this new and sometimes unexpected event. A cancer diagnosis can in many situations cause a ripple effect that can drastically change your life and that of your loved ones. From employment concerns to insurance barriers, there are a lot of factors impacted by cancer. Some of those direct ripple effects are caused by policy and laws established by either the local, state or federal government. I believe that understanding what laws are being considered or have been enacted will help to determine how you want to advocate and voice your frustrations and experiences. Figuring out how to start the process of advocating can sometimes be a daunting and intimidating task. To help people initiate change The Cancer Policy Institute (CPI) at Cancer Support Community provides a place where people can begin to understand what is currently being debated and considered for change. “The CPI brings together patient advocates and policy experts to ensure that the voices of cancer patients and their loved ones play a central role in federal and state legislative, regulatory, and executive policy making.” On August 29th, Kristen Santiago with Cancer Support Community will be joining 2 other panelist at the Eisenmann Center in Richardson. She will be coming to speak on Federal, State and Local policies that impact cancer patients. I hope to you can join us in this free event that is open to the public. To register click on this link: BuisnessBreakthroughsFuture.org.
Abogacía y CáncerHay momentos en el tiempo cuando un evento importante de la vida puede despertar la motivación para hacer cambios. La necesidad de cambio se produce cuando las personas se encuentran con obstáculos y frustraciones al lidiar con este nuevo e inesperado evento. Un diagnóstico de cáncer puede en muchas situaciones causar un efecto dominó que puede cambiar drásticamente su vida y la de sus seres queridos. Desde preocupaciones de empleo hasta barreras de seguro de salud, hay muchos factores impactados por el cáncer. Algunos de estos efectos dominantes directos son causados por políticas y leyes establecidas por el gobierno local, estatal o federal. Creo que entender qué leyes se están considerando o se han promulgado ayudará a determinar cómo quiere abogar y expresar sus frustraciones y experiencias. Averiguar cómo comenzar el proceso de abogacía a veces puede ser una tarea desalentadora e intimidante. Para ayudar a las personas a iniciar un cambio El Cancer Policy Institute (CPI) de la Cancer Support Community proporciona un lugar donde las personas pueden comenzar a comprender lo que se está debatiendo y considerando para el cambio. “El CPI reúne a defensores de pacientes y expertos en políticas para garantizar que las voces de los pacientes con cáncer y sus seres queridos desempeñen un papel central en la formulación de políticas legislativas, regulatorias y ejecutivas federales y estatales”. El 29 de agosto, Kristen Santiago con Cancer Support Community se unirá a otros 2 panelistas en el Eisenmann Center en Richardson. Ella vendrá a hablar sobre las políticas federales, estatales y locales que impactan a los pacientes con cáncer. Espero que puedan asistir a este evento gratuito que está abierto al público. Para registrarse, haga clic en este enlace: BuisnessBreakthroughsFuture.org.]]>
Join us for the 2nd Annual
Business, Breakthroughs and Future of Cancer Care
A Take on Cancer Together InitiativeWednesday, August 29, 2018 | Eisemann Center Open to the Public | FREE of Charge | CEU’s, CNE’s & CECH’s Offered 3.5 Contact Hours for Nurses, Social Workers, Professional Counselors & Health Education Specialists 8:30-9:30am Registration & Vendor Fair Breakfast 9:30-10:30am
Kristen Cox Santiago, MSSenior Director, Policy & Advocacy Cancer Support Community
- Cancer Policy & Advocacy
- Federal, State and Local policies that impact cancer patients
- Challenges and barriers to cancer patient access to care
- Policy on a federal, state and grassroots level
- Economic Impact of Cancer Care and Research
- Cost of cancer care
- Investing in cancer research
- Cancer Prevention and Research Institute of Texas
- Treatment Advancements and the Future of Cancer Care
- Genomic Sequencing
- Targeted Therapies
The Big Texan Steak Ranch Restaurant in Amarillo serves a 4½ pound steak for free, if you can eat it in an hour.]]>
Back in 2007, I was a consultant at Hitachi Consulting and my boss requested us to perform a complete technology assessment for what was then Gilda’s Club North Texas, now Cancer Support Community North Texas (CSCNT). Since then I have continued to volunteer as I believe that CSCNT truly makes a difference with their services in the lives of all people impacted by cancer. I continue to help as an advisor on the strategy and development committee while also lending a hand at some of their many events such as the holiday party and Rock the Red Door. When not working and volunteering, I enjoy rebuilding old cars, spending time with my family and traveling.]]>
Cancer-Related Behavioral Health Grant A cancer diagnosis can bring a lot of challenges and frustrations as you continue with treatment. As a social worker, I truly believe that mental health plays a huge role in the ability to help overcome major barriers. It is a privilege for me to work for an organization that understands the importance of offering support to those impacted by cancer. Everyday more healthcare professionals are acknowledging that cancer has a way of creating major ripple effects within one’s own life and family. This month HealthWell Foundation took a huge step forward by offering a grant to patients in cancer treatment who might also benefit from behavioral health help. In collaboration with several national nonprofits including, Cancer Support Community, this is the first of its kind tool for patients. I hope that as you read this blog you share the knowledge with other healthcare professionals to offer this service to anyone who might benefit and qualify. In the link below you will find the criteria and the number to call. Click here for more information.