Cancer Support Community Cancer Experience Registry

What is the Cancer Experience Registry? It is a community of people touched by cancer where the primary focus is on collecting, analyzing and sharing information about the experience and needs of the patient and family throughout the cancer journey. Why is it important? There is a need to include social and emotional care as an integral part of cancer care. This has been shown to improve quality of life and also health outcomes of cancer survivors. The information collected from the registry will be used to inform the future of cancer care, develop programs and offer services to more effectively address the emotional and social needs of people affected by cancer. Who is eligible to participate? The Cancer Experience Registry is open to people touched by any type of cancer. Whether you were recently diagnosed, you are undergoing treatment or you are years past treatment, you are eligible to participate. By joining, you can make a difference in improving the quality of life and wellbeing of people touched by cancer. How to participate? If you have ever been diagnosed with cancer, please join now and share your experience with us. Your personal information will be protected. Also, if you know somebody who has been diagnosed with cancer at any point in the past please encourage them to join. You can join by clicking on the link below!   For more information, visit http://www.cancersupportcommunity.org/MainMenu/ResearchTraining/Cancer-Experience-Registry.html.]]>

4 thoughts on “Cancer Support Community Cancer Experience Registry

  1. Caroline Snabes

    Thank you for reaching out to us, Carolyn. I have informed one of our social workers of your request, and she should be in touch shortly.

  2. Cheryl

    Hello,
    I was diagnosed with Stage 4 colon cancer and I need to talk to people and share ideas on how to live and beat this thing into being gone. Please help.
    Thank you,
    Cheryl

  3. Caroline Snabes

    Cheryl, we have forwarded on your request to one of our social workers. We will be in touch shortly!

Leave a Reply

Your email address will not be published.